My super hero

To my little super hero,

I watch you every day try to reach goals that you don’t realize are set in place for you.

I see you struggle to do simple tasks and watch the frustration in your face as you’re unable to grasp a toy on the first reach.

I hold you exhausted after hours of therapy and kiss your sweet cheeks and tell you how proud I am of you.
Instead of a “soccer mom” I’ve become a “therapy mom.” Daily therapy appointments with your friends that even have they’re own song (written by yours truly) to prepare you each morning.

Multiple lab draws and specialist appointments keep your calendar full.

I’m exhausted every night as I tuck you in and I can only imagine what you’re body is feeling. Do your muscles ache? Do you have a headache from over stimulation? Are you pleased with another day conquered?

I drink in your smile every chance I get and am so grateful you’re mine.

You bring joy with you every where you go. Your giggle is irresistible, almost as remarkable as your hair.

You have been through so much in your few years of childhood with more mountains in front of you. There’s no stopping you. Your determination and courage are astounding.

As the anesthesia team was about to wheel you back for your 11th sedated procedure I looked at you and asked for a high five. You gave me your trademark grin, slowly reached to give a high five, and in your eyes you said “I got this mom.”

As the tears were about to flow the only thing running through my head was this…

You’re so brave and you don’t even know it.

Love,

Your mom in awe