There is currently a Help Hope Live campaign for our son to help get him to Intensive Therapy in California. Children can make the same gains in just 3 weeks that they would in an entire year of traditional therapy! We are going to attend a 4 week session in April. We are so excited for Christopher to make more progress. With your help we can make that happen! Donations ARE tax deductible!
There is also a Bravelets page to raise money and awareness for Congenital Disorder of Glycosylation. Ten dollars from every purchase will go towards The Rocket Fund at Sanford-Burnham Medical Institute, which is the fund specifically for CDG. The products are beautiful and the inscription of “BE BRAVE” is a great reminder to us all.
Please go to this link to purchase a Bravelet!